Assisted dying campaigner urges lawmakers not to forget the incurably suffering, as new Bill is introduced into the Lords

A new Bill that would allow doctors to prescribe lethal medication to patients with less than six months to live has been introduced in the House of Lords. My Death, My Decision, which campaigns for legal assisted dying for both those with terminal or incurable conditions, has welcomed the Bill as an important step forward but urged lawmakers not to forget the incurably suffering. 

The Bill has been introduced by Baroness Meacher, who is the Chair of Dignity in Dying. Under the prospective law, terminally ill mentally competent adults in the final six months of their life would be able to request assistance to die. Two independent doctors and a High Court judge would have to assess each request and grant it permission before assistance could be provided.

The prospective legislation would not help those with incurable medical conditions, such as Tony Nicklinson who suffered from locked-in-syndrome – despite up to 88 per cent of Britons supporting such a right, according to a 2019 poll. 

Speaking to Sky News about the Bill, Tony Nicklinson’s daughter Lauren Nicklinson said:  

‘This Bill coming forward today is really important but doesn’t go far enough. It wouldn’t help people like my dad who spent years trapped inside his own body, living a life he didn’t want to live – where he had no way out.

‘Whilst Dignity in Dying campaign for the terminally ill – which we absolutely support – we do want to see it go further and Humanists UK and My Death, My Decision are very much at the forefront of that … [Those who are incurably suffering, like Tony] aren’t being publicly represented in the same way, but they still need to be fought for … Why isn’t their right to choose and autonomy being respected? … Why was Dad allowed to die in the way he did, when he could have had a much more peaceful way out?’

My Death, My Decision’s Chair Trevor Moore said: 

‘Allowing people who are terminally ill or incurably suffering the freedom to choose how, where, and when they die is the hallmark of a compassionate society. With up to 88% of the public favouring a change in the law, half of all doctors personally backing reform, and progressive countries around the world showing that autonomy can be balanced alongside robust safeguards, now is the time for our outdated laws on assisted dying to change. 

‘As a first step towards securing that much-needed reform, we strongly welcome this Bill and the dignity, choice, and compassion it would enshrine into law for some of those with terminal illnesses. However, we urge lawmakers not to silence the voices of those who are incurably suffering, or ignore their cause as well. The suffering of people with incurable medical conditions is no less severe than those with terminal illnesses. And their choices deserve no less respect.’ 

Notes:

For any more information or comment please contact My Death, My Decision’s Campaigns and Communications Manager at campaigns@mydeath-mydecision.org.uk.

About My Death, My Decision

Read more about My Death, My Decision’s campaign for an inclusive change in the law: https://www.mydeath-mydecision.org.uk/

My Death, My Decision is a grassroots non-profit organisation that campaigns for a balanced and compassionate approach to assisted dying in England and Wales. As a growing movement, we are at the forefront of social change: nearly 90% of the public now favours a change in the law to allow adults of sound mind, who are either terminally ill or facing incurable suffering, the option of a peaceful, painless, and dignified death.

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Submissions invited: The Tony Nicklinson Memorial Prize

Title: In a society that wants legal assisted dying, who should be eligible for a right to die?

Submissions are invited for a new annual award, ‘The Tony Nicklinson Memorial Prize’ sponsored by My Death, My Decision. The prize (£500) is aimed at developing and fostering an interest in end-of-life choices and patient autonomy. This award is specifically aimed at trainees/ students (including undergraduates/ postgraduates/ doctoral candidates in medicine, allied healthcare professions, law, philosophy, and social sciences), and is in commemoration of the late right to die campaigner Tony Nicklinson. 

Deadline: Midnight, 31 May 2021

Essays should be submitted in either word or pdf format to mail@mydeath-mydecision.org.uk


Submissions must be the original work of a single author and no longer than 2,000 words (minimum 1000 words, excluding footnotes). A suggested maximum of 15 references in any respected referencing style may be used. A bibliography is not necessary. Entries must be in Arial 11pt for the text and Arial 10 for footnotes. Candidates should supply their full name, email, phone number, and word count on a covering page. 

The winning candidate will be judged by a panel of My Death, My Decision whose decision is final. All entries will be anonymised before submission to the judges. The winner will be announced on 31 June 2021, however, if there are a large number of entries this deadline may be extended. 

The winning candidate will retain copyright ownership of their paper but will grant My Death, My Decision the non-exclusive right to publish the paper, in print and electronically, in their publications and other media. You will also agree to make any pre-publication editorial modifications to the winning entry that are required for this purpose. 

About Tony Nicklinson

Tony Nicklinson was a 58-year-old father of two, who became paralysed following a sudden stroke in 2004. His condition (locked-in syndrome) left him dependent upon around the clock care for almost every aspect of his life and in a state of constant pain. Although it was expected that Tony could have lived for a significant period of time, his condition would not have improved and he became determined not to spend the rest of his life in a state of increasing misery. In 2012, he challenged the UK’s laws on assisted dying which makes it a criminal offence to help someone to die, on pain of up to 14 years in prison, even if they are suffering incurably and wish to end their lives but cannot do so because they are physically incapable. Six days after the High Court dismissed his case, Tony ended his life via his only legal means: starving himself to death. In his honour, his wife, Jane, continued Tony’s legal case through to the UK Supreme Court alongside MDMD’s patron Paul Lamb, where a majority of the UK’s highest judges ruled the law potentially breached Article 8 of the European Convention on Human Rights, but that Parliament should be given time to consider the matter before a definitive judicial ruling. 

About My Death, My Decision 

My Death, My Decision is a grassroots not-for-profit campaign group, which advocates for a change in the law to allow those who are terminally ill or incurably suffering the option of a legal, safe, and compassionate assisted death. We were founded to represent the interests of those facing constant and unbearable suffering, at a time when no other right to die organisation would, and to advocate on their behalf to secure a lasting change in the law.  We have quickly become one of the leading assisted dying organisations in England and Wales. We are advised by an expert medical group, are a founding member of the UK Assisted Dying Coalition, and at the forefront of social change: nearly 90% of the public now favours a change in the law to allow assisted dying for those who are incurably suffering or terminally ill

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