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Distinguished Doctors and Philosophers urge BMA members to support assisted dying

Credit: https://ab.co/2Tfnjrm

A diverse range of thirty doctors, philosophers, academics, and campaigners have signed an open letter, which appeared in the Guardian today, urging members of the British Medical Association to support assisted dying in the ongoing survey.

The joint letter was organised by the UK Assisted Dying Coalition, of which My Death, My Decision is a founding member, and follows just days after the Royal College of GPs voted to maintain their opposition to assisted dying, despite a majority of GPs wanting to move to a neutral or supportive position. 

Among those who have signed the letter are My Death, My Decision’s Chair Trevor Moore, Professor A.C. Grayling, Professor John Harris, Dr Henry Marsh, Dr Wendy Savage, Melanie Reid MBE, Dr Michael Irwin, The Revd Dr Scott S McKenna, and Professor Raymond Tallis. 

The full letter and list of signatories can be found here

Trevor Moore the chair of My Death, My Decision said:

‘In the last decade, there has been an overwhelming shift in popular support for assisted dying, which the BMA’s policy has lagged behind. More countries than ever now have legal, safe, and compassionate assisted dying – and it is time we follow suit’. 

‘By choosing to remain opposed to assisted dying and retaining a position which closes down debate and discourse, the BMA will not be stopping the public or our decision-makers from continuing to consider reform. Instead, they will prevent themselves from constructively contributing to a national conversation and send a signal which risks alienating doctors from the wishes of their patients’. 

‘We were proud to have lent our support to the voices of doctors and leading ethicists who would like to see a change in the BMA’s policy, and hope doctors who support reason, compassion, and empathy will vote in favour of assisted dying’. 

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MDMD urges BMA to vote in favour of compassion and empathy

My Death, My Decision has called on the British Medical Association (BMA) members to consider compassion and empathy by voting in favour of assisting dying in the association’s consultation which closes on 27 February

Last year, the BMA announced it would survey its members after a motion was passed at its annual policymaking meeting to hold a consultation and ‘support patient autonomy’. 

The BMA had previously adopted a neutral stance on assisted dying in 2005 but then changed and became opposed in 2006. This is the first time all 160,000 members of the BMA will be polled on the issue. 

Later this month, the results of a similar consultation by the Royal College of General Practitioners will be announced. 

Doctors will be asked whether the BMA should actively support, oppose, or neither actively support nor oppose (take a neutral stance) on a change in the law to permit doctors to prescribe drugs for adults of sound mind, who are either incurably suffering or terminally ill, to end their life. The survey will similarly ask what position members think the organisation should take in regard to doctors administering lethal substances (often known as euthanasia). 

Dr John Chisholm, BMA Medical Ethics Committee chair, said:

‘Doctors and medical students have a particular interest in discussions around legislation because any change in the law would impact on them not just personally but professionally. Therefore, this poll will allow us to gather information about the breadth of views held by our membership, which will then inform any future policy decisions and how we respond to any proposals for a change in the law.’

MDMD urges BMA members to vote in favour of assisted dying reform, and for others to encourage their doctors to support a change in the law

Trevor Moore chair of the campaign group My Death, My Decision said: 

‘We strongly welcome the British Medical Association’s decision to give their members a say on this issue. 

The right to choose how, where, and when we die is a fundamental human right, and it is unacceptable that the law forces those facing unbearable pain or terminal illness to suffer in ways that often cannot be palliated. More than one person a week now travels from the UK to end their life in Switzerland – this is double what the number was five years ago. 

There is a better way forward. New evidence from countries, including Canada, demonstrates that a balance between respecting autonomy and robust safeguards can be achieved. We urge all doctors who believe in reason, compassion, and empathy to support a change in the law.’

NOTES

For further comment or information or requests for interviews, please contact My Death, My Decision Campaigns and Communications Manager Keiron McCabe at keiron.mccabe@mydeath-mydecision.org.uk or phone 020 7324 3001. 

More about the BMA’s consultation

The BMA is a trade union representing and negotiating on behalf of 160,000 doctors in the UK. In 2019, at the BMA’s main policymaking meeting members voted for a motion to poll members on whether the association should adopt a neutral position on assisted dying. 

The BMA’s consultation will run from 06 February until 27 February and is being organised by the independent organisation Kantar. 

Members will be asked whether they believe the BMA should actively support, actively oppose, or neither actively support nor actively oppose (take a neutral stance on) a change in the law to permit doctors to prescribe drugs for eligible patients to self-administer to end their own life. They will also be asked whether the BMA should actively support, actively oppose, or neither actively support nor actively oppose (take a neutral stance on) a change in the law to permit doctors to administer drugs with the intention of ending an eligible patient’s life.

Results from the survey will be published ahead of the ARM, which takes place in Edinburgh from 21 to 25 June.

2019 Motion

That this meeting notes the recent decision by the Royal College of Physicians to adopt a neutral position on assisted dying after surveying the views of its members, and:
i)   supports patient autonomy and good quality end of life care for all patients;
ii)  recognises that not all patient suffering can be alleviated;
iii) calls on the BMA to carry out a poll of its members to ascertain their views on whether the BMA should adopt a neutral position with respect to a change in the law on assisted dying.

The law on assisted dying in the UK

Under section 2(1) and 2(2A) of the 1961 Suicide Act, it is unlawful in England and Wales to encourage or assist someone to end their life. Anyone found guilty of an act ‘capable of encouraging or assisting the suicide or attempted suicide of another’ can face up to 14 years’ imprisonment. 

Recent updates 

Assisted dying is now permitted for terminally ill and incurably suffering people in Canada, Belgium, Italy, Luxembourg, and the Netherlands. It is also permitted specifically for terminally ill people in Colombia, ten US jurisdictions, and the Australian states of Western Australia Victoria.

In January 2019, MPs debated in a Westminster Hall debate proposals for an independent call for evidence into assisted dying. MPs from all major political parties called for the Secretary of State for Justice, Robert Buckland QC MP, to initiate a formal call for evidence on the impact of the UK’s existing law. 

Last year two members of My Death, My Decision living different conditions that mean they are facing incurable suffering separately applied for permission to judicially review the law on assisted dying in England and Wales. Paul Lamb, who is paralysed from the neck down, was refused permission from the High Court in December 2019; Phil Newby, who suffers from motor neurone disease, was denied permission from the Court of Appeal in January.

About My Death, My Decision

My Death, My Decision is a grassroots not-for-profit organisation that campaigns for a compassionate and balanced approach to assisted dying in the UK. As a growing movement we are at the forefront of social change: nearly 90% of the public now favours a change in the law to allow adults of sound mind, who are either terminally ill or facing incurable suffering, the option of a peaceful, painless, and dignified death.

Unlike some right-to-die organisations, My Death, My Decision does not believe that assisted dying should be restricted to only those who are terminally ill with a prognosis of six or fewer months left to live. Just as compassion for others motivates people to support assisted dying for those who are terminally ill, we believe it should also underscore support for those facing incurable suffering, as were the late Tony Nicklinson and Debbie Purdy, and now Paul Lamb and Phil Newby. 

Read more about how nearly 90% of the public support an inclusive change in the law. 

Read more about research which found that more than one British citizen a week now ends their life in Switzerland. 

Read more about My Death, My Decision’s campaign for an inclusive change in the law:

http://www.mydeath-mydecision.org.uk/

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The Omid T Judicial Review: “Bound to be Dismissed”?

MDMD’s Campaigns and Communication Manager, Keiron McCabe, breaks down the judgement behind Omid’s defeat.

On Tuesday 2nd October 2018, Omid T’s assisted dying case , known as R (on the Application of T) v Ministry of Justice [2018] EWHC 2615 (Admin), lost at its first hurdle in the High Court.

In order to challenge the UK’s prohibition of assisted suicide, it was necessary for Omid to bring a judicial review. This is the process in which the courts appraise the validity of a law based on a number of strict criteria, one example being a disproportionate infringement of the Human Rights Act 1998. Omid’s legal team argued because terminal and incurably suffering patients cannot access an assisted death, their rights to a private and family life were infringed and Section 2(1) of the Suicide Act 1961 must be declared incompatible with Omid’s human rights. In some respects this meant that Omid’s case was similar to Tony Nicklinson’s 2012 case , though different from Noel Conway’s current appeal which only focuses on the rights of terminally ill patients.

However, prior to its ruling, Omid’s case had acquired a considerable interest from the legal community because of its unique evidenced-based approach. Usually judicial reviews do not deal in evidence. It is assumed a review is merely on a matter of law as the facts are agreed in advance. Indeed the UK’s civil procedure rules, the rules which guide conduct in the courts, make no mention of evidentiary rules such as cross-examining witnesses for judicial review – it is a rarity, granted only at the discretion of the courts.

Omid’s case garnered such an intense interest precisely because it was attempting to argue that the UK’s law infringed human rights based on evidence. In doing so, Paul Bowen QC, Omid’s lawyer, was seeking to emulate the Canadian case “Carter v Canada”, which legalised assisted dying when the Supreme Court of Canada found as a matter of fact:

“no evidence from permissive regimes that people with disabilities are at heightened risk of accessing physician-assisted dying;”

“no evidence of inordinate impact on socially vulnerable populations in permissive jurisdictions;”

“no compelling evidence that a permissive regime in Canada would result in a ‘practical slippery slope.’”

Considering the profound implications such an approach would have had on the right to die in the UK, the courts decided before commencing a full 3-4 week examination of the evidence, Omid had to prove that his case should be granted the rare discretion to cross-exam witnesses. However, it was agreed since the Court of Appeal may hear relevant issues whilst it was separately dealing with the Conway case, that the High Court would not pass judgement on the Omid case until afterward Conway.

“In my view, there is no moral or legal justification for drawing the line at terminal illness or 6 months or fewer to live. This would not have helped Debbie Purdy, Tony Nicklinson or me or many others who are begging for help to end our lives at a time of our choosing without pain in a dignified way.” – Omid T

Last Tuesday, Lord Justice Irwin, with whom Mr Justice Phillips agreed, ruled that Omid’s legal team did not have permission to cross examine the main witness, Baroness Finlay, and the case therefore could not progress to a full judicial review.

Omid’s ruling itself was somewhat complicated by the Conway case, as it was held that the evidence in the two cases “overlapped in great measure” . Indeed, Lord Justice Irwin went further and foundthat even though Conway’s case only focused on terminally ill patients, there was not a “material distinction” in the evidence between Conway and Omid’s appeals. This was because the evidence used for Omid’s appeal included information about jurisdictions in which assisted dying is only legal for those who are terminally ill and not both terminally ill/incurably suffering.

Additionally, Paul Bowen QC conceded, that following Conway, the evidenced-based approach of Omid could not succeed because the High Court would be “bound to find against [Omid]”.

However, even disregarding that concession, Lord Justice Irwin stated that he would have “reached the same conclusion in any event”.

Fundamentally, Lord Justice Irwin rejected the notion that a legal case on assisted dying could be assessed on the basis of factual evidence alone. He held that: “There exist facts bearing on the issue in question, and there are also a range of questions not reducible to hard fact, about which opinion must be formed and considered. The content of a study of impact of the legislation of euthanasia in the Netherlands is principally a question of fact. The methodology, rigour and accuracy of the conclusion of such a study is properly a question of expert opinion. The implications of such a study for the outcome of any english legislative change consequent on a declaration of incompatibly is not a ‘fact’, but a question of judgement about the future, and moreover is arguably a question beyond the special expertise of some (or perhaps all) of the instructed experts.”

He further stated that he did not have “any clear idea what…would be gained by oral evidence”, as opposed to second hand evidence such as published reports, and  concluded “…the factual foundations for the views of various experts are either already clear, or can be clarified…based on written material…Mere differences of opinion or judgement will be evident from the existing reports and should not be the subject of further exchanges”.

As a final matter, Omid’s lawyers argued that even if their evidenced-based approach was bound to fail, the terminal-incurable distinction between Omid and Conway’s cases meant that Omid faced a strong chance along a more traditional judicial review route. Hence they requested for Omid’s case to be “leapfrogged” to the Supreme Court. This would mean, that instead of having to appeal to the Court of Appeal and then to the Supreme Court, Omid’s case could have been heard directly by the most authoritative court in the UK. However, Lord Justice Irwin considered this request to be “premature” and decided that Omid’s legal team could not start asking for their case to progress before it had even been given judgement. Lord Justice Irwin offered a glimmer of hope by suggesting that if the team wanted to continue, he would “do what is possible to facilitate speedy hearings for any further applications”. However, this prospect is very unlikely given that Omid sadly ended his life(link to previous Omid ends life article) at the Swiss Lifecircle clinic 5 days before the court gave its judgement. Omid’s case is therefore without a claimant, and its future is unknown.

Lord Justice Irwin’s reluctance to grant Omid an evidenced based review, though disappointing, is understandable. The High Court is a relatively junior court in the UK judicial hierarchy and at the most senior level,  Assisted Dying has proven itself to be an issue of immense complexity for the Supreme Court. Hence it is understandable, faced with such a momentous decision, the High Court erred on the side of caution.

However, My Death, My Decision does not think the High Court reached the correct conclusion. In 2017, before she was recently appointed to the Supreme Court, Lady Arden,  delivered an excellent speech on the issues of patient autonomy and medical law. In that speech, Lady Arden recognised that sometimes, on issues of particular importance, the UK courts may have additional responsibilities in conducting a judicial review. She said when a topic is so important, as Assisted Dying is, that Parliament will likely look to the courts, for some assistance, the courts may be required to examine information “in greater detail than it would have done before … and [deliver] a special type of judgement”. Similarly, in a 2015 case , decided above the High Court in the Court of Appeal, Lord Justice Lewison said that if the “justice” of a special case required a fuller examination of evidence,  a court may permit the use of cross examination within judicial review.

Reflecting on these statements, it is clear that the ethical and moral implications of Assisted Dying mean it is a topic of special importance. Assuming that Parliament will turn to the courts for help, the justice of Assisted Dying must require our courts to conduct an investigation on fullest possible terms.  Cross examination is a necessary part of that greater investigation. Unlike carefully crafted statements, cross examination is a candid process. For example, an expert who presents evidence may be sensitive to avoid inconvenient or inconsistent information within a written statement. Yet, when an expert is asked to confront their own inconsistencies or to address moot issues which may undermine their argument, such problems cannot so easily be avoided.

Alternatively, those who support the Omid ruling could argue that a good lawyer should spot these inconsistencies anyway and could bring them to the attention of the court themselves. Yet, Lord Irwin rightly said this approach would not be good. A good lawyer will only ever be able to spot such problems due to advice from a different expert and judges already know such differences of opinion between experts. Additionally, judges are shrewd professionals and are well trained to listen skeptically to the arguments of good lawyers. However, they may be more willing to defer to the credentials of an expert. Cross examination is therefore an important tool to assess the strength of an experts evidence. Whilst lawyers may, to some extent, be capable of clarifying issues, they will never speak with the same authority as someone can about their own evidence.

My Death, My Decision believes any debate on Assisted Dying should be based on the fullest of evidence available. Whilst Omid’s case may be disappointing, it was not brought in vain. Omid highlighted the intellectual inconsistencies in advancing a right to die merely for those with a terminal illness. Moreover, if nothing else, the ambition of Omid’s approach may yet bear fruit, as if Conway moves to the Supreme Court and Lady Arden is sitting, a fresh opinion on the value of an evidenced based approach may yet still be possible.

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PRESS RELEASE: MDMD Response to Noel Conway’s legal challenge on Assisted Dying

Today MDMD issued the following press release:

My Death, My Decision is pleased that, with support from Dignity in Dying, (DiD), Noel Conway, who is most unfortunately terminally ill with motor neurone disease, has begun judicial review proceedings, claiming that the failure of Parliament to amend the present Suicide Act, to permit him to have a medically-assisted rational suicide, unlawfully interferes with his rights.

While welcoming Mr Conway’s appeal, MDMD regards his attempt to change the law only as a “first step”.  By focusing on someone who is terminally ill, we are forgetting that very many other individuals (especially the elderly) may also be suffering severely, and for much longer periods than six months, from various medical conditions. These people may also hope, for the possibility of a legalized medically-assisted rational suicide.  Whenever our Parliament considers legalizing “assisted dying” again, it must then consider changing the law to include all competent, incurably suffering adults – as is fortunately possible today in Belgium, Luxembourg, The Netherlands and Switzerland.

The six-month criterion proposed by DiD is a particular problem for those suffering from early stage dementia. By the time a sufferer is within six months of dying they will have lost their mental capacity to choose an assisted death, should that be available. By then they are likely to have experienced extensive suffering and loss of dignity. Dementia is now the single largest cause of death in England and Wales. [Office of National Statistics:  Deaths registered in England and Wales (Series DR): 2015]

MDMD also wants to comment on part of the extensive statement by Mr. Conway which appears on the DiD website, www.dignityindying.org.uk/news/noel-conway-seeks-change-law .  In this, he notes that, regarding the possibility of going to DIGNITAS in Switzerland, “I do not wish to die in a faceless clinic, away from home and without my loved ones around me”.  Since MDMD was founded in 2009, at least nine of its supporters have travelled to Switzerland to end their lives there. Most of them have gone to DIGNITAS.  Our patron, Dr. Michael Irwin, has personally witnessed five such assisted suicides.  While we strongly agree with the need for assisted dying without travelling abroad, it is a great distortion of the truth to describe DIGNITAS – To live with dignity – To die with dignity, near Zurich, as “faceless”. In fact, The Guardian, on November 18, 2009, noted that it “is sunny, clean and neutral, not unlike a holiday rental apartment”.  Furthermore, everyone can see photos on the DIGNITAS-website. The word “clinic” is inappropriate as there is no medical staff or equipment present (although an individual is interviewed by a Swiss physician, independent of DIGNITAS, upon their arrival in Zurich, who writes the necessary prescription).  Furthermore, family members and friends are encouraged by DIGNITAS to be present when someone dies, and this happens with almost all assisted dying cases.

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MS sufferer Andrew Barclay ends his life at Dignitas

The Daily Mirror reports the story of Andrew Barclay who ended his life at Dignitas in Switzerland. It includes a clear and articulate video statement made by Andrew  shortly before his death. He had been suffering from MS for 25 years, but it was when his illness entered the secondary progressive stage that Andrew decided that his quality of life was incurably below the level he could tolerate, and that he should take steps to end it. He took time to discuss the decision with his family who, with obvious difficulty, accepted and supported him.

The video ends with a statement that summarises his feelings: “I really don’t see the point in waiting until one is a virtual corpse that simply breathes”.

Some other quotes from Andrew give insight into the difficulties in choosing the time to end his life, but also to the relief that his eventual decision brought him.

“There are still genuine moments of happiness. But they no longer outweigh a life in which every single day is a struggle from start to end. So I have made this decision.

“There will always be a reason not to go ahead with it – Christmas, a birthday, an anniversary.

“The decision is made, the date is set and the hard truth is there is now a job to be done. I’ve spent 14 months fighting to get to Dignitas and there’s now a sense of relief it will soon be over.”

The newspaper article quotes Dignity in Dying Chief Executive Sarah Wootton as saying that it is tragic and unacceptable that people like Andrew feel they have to end their lives in Switzerland. The article fails to point out that the Dignity in Dying proposal for an assisted dying law would not help people like Andrew, as he was not terminally ill with a life expectancy of six months or less.

MDMD campaign for a law that will help people like Andrew.

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Protecting Vulnerable People

We were interested to see an article on the Christian Institute website about MDMD, claiming that we “lobby for legal protections to be removed from vulnerable people”. Nothing could be further from the truth. MDMD is concerned that any right-to-die legislation should fully protect vulnerable people.

We suggest that the author read our proposals for extending advanced decisions which would allow assisted dying for those who wish it, but still provide vulnerable people with the same protection as they have today. This is much stronger protection for vulnerable people than previous proposals for right-to-die legislation and deserves to be seriously considered.

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MDMD Website launched

Today MDMD formally launches its website. Following a press release and interviews, an article in the Sunday Times 9th October describes MDMD’s main objectives under the headline “Non terminally ill seek right to die”, including a mention of our suggestion of an extended advance decision. and our reasons for believing that an assisted dying law restricted to those who are within 6 months on dying is not the right approach for the UK.

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Euthanasia 2016

Euthanasia 2016 took place in Amsterdam in May 2016. Slides from the presentations can be found in the following link, including the presentation on ‘When is a Life Complete?’ by MDMD Coordinator, Phil Cheatle

Source: Presentations | Euthanasia 2016

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Helping my Father Go To DIGNITAS

MDMD supporter Penny Hall’s father suffered from dementia. He chose to end his life in Switzerland while he was still sufficiently mentally competent to do so. The story is reported in this Cambridge News article.

Why should he have to travel to Switzerland?
Why should his family suffer a police investigation for accompanying him?

The end of the article talks about Dignity in Dying‘s campaign and points out that their proposed Assisted Dying law would not help people like Penny’s Father. While MDMD supports Dignity in Dying as far as they go, we think their approach is too limited precisely because of cases like this.

MDMD campaigns for a more compassionate law in this country – so that people like Penny’s father can have what they see as a good death without traveling abroad… a law the helps people in early stage dementia – not one limited to the 6-month terminally ill.

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