On the anniversary of her death, we salute the legacy of the committed assisted dying campaigner Debbie Purdy

Debbie Purdy led an enviable life before multiple sclerosis changed it forever. As a music journalist Debbie not only had access to music gigs for free, but the venues wouldn’t allow her to pay for drinks. It was on one such occasion in Singapore that she met her husband-to-be, the renowned Cuban jazz musician Omar Puente, who went on to support Debbie tirelessly as she faced the challenging symptoms of her illness with considerable grit.

On the anniversary of her death, we remember Debbie’s powerful legacy in forcing the government, through her legal case in 2009, to issue guidance on the prosecution criteria for those who assist someone to die. She wanted to be sure Omar would not be prosecuted if he accompanied her to an assisted death in Switzerland.

The then Director of Public Prosecutions, Keir Starmer, issued the Crown Prosecution Service guidance to apply in deciding whether a prosecution is in the public interest, even if there is sufficient evidence to prosecute. There are sixteen factors tending in favour of prosecution and six against. You can see the details here: https://www.cps.gov.uk/legal-guidance/suicide-policy-prosecutors-respect-cases-encouraging-or-assisting-suicide

It is worth remembering the title of Debby’s heart-warming memoir, It’s not because I want to die. In choosing that phrase, she echoed what we know to be true: that those with incurable conditions or who are terminally ill simply want the ability to choose when and where their lives end, if they consider that their suffering has become intolerable. But for their suffering, they would want to live on. Our own late patron Paul Lamb, paralysed in a car accident, expressed a similar view in his campaigning.

Experience since the CPS issued its policy on prosecution, following Debby’s legal case, shows that it is not being applied in a consistent manner. Only this year, My Death, My Decision member Sue Lawford was arrested on her return to the UK, after she accompanied Sharon Johnston, a tetraplegic, to Dignitas.

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Assisted Dying Inquiry – Have your say!

If you see a blank page after pressing ‘Next’, scroll back to the top of the page.

This page includes the Health and Social Care Committee’s survey on assisted dying. This is not a duplicate survey but an embedded version of the actual survey.
You can find the survey here: https://www.smartsurvey.co.uk/s/M66AML/

If you see a blank page after pressing ‘Next’, scroll back to the top of the page.

This page includes the Health and Social Care Committee’s survey on assisted dying. This is not a duplicate survey but an embedded version of the actual survey.
You can find the survey here: https://www.smartsurvey.co.uk/s/M66AML/

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Assisted Dying inquiry launched

The Health and Social Care Committee has launched an inquiry into assisted dying in England and Wales. My Death, My Decision has strongly welcomed the news and hopes to work constructively with the Committee.

My Death, My Decision is campaigning for an assisted dying law that will allow adults of sound mind who are either incurably, intolerably suffering, or terminally ill, the right to have an assisted death. We hope the inquiry will examine jurisdictions like Spain, Austria and Canada that have laws that are not restricted to only people who are terminally ill. 

Assisted dying has not been properly examined by parliament since the House of Lords’ committees in 2004. In the 18 years since Parliament last investigated the matter, public and professional opinion have changed considerably. A poll by the National Centre for Social Research (NatCen) found that around 90 per cent of the British public favours a change in the current law. The British Medical Association (BMA) and the Royal College of Nursing (RCN), opposed a change in the law during the 2004 parliamentary inquiry but both have since re-evaluated their stance and changed their position to neutrality – as has The Royal College of Physicians. 

In the last two decades global opinion has shifted in favour of the option of assisted death. In 2004, only 38 million people around the world lived in jurisdictions where assisted dying was legal, whereas currently it has increased ninefold to more than 360 million people worldwide.

My Death, My Decision Chair Trevor Moore said:

‘I am so glad that parliament is at last examining assisted dying – something for which we have been campaigning for years. We know that many of the people we support, people who are incurably suffering and people who have witnessed a loved-one’s painful death, will welcome this news. We look forward to working with the committee and I hope they look at all the international evidence that shows that safe, compassionate assisted dying laws are possible.

‘Parliament will be following in the footsteps of Jersey, the Isle of Man, Scotland, Ireland and now France in finally tackling this issue. People who are incurably suffering deserve the right and freedom to make decisions about the end of their lives.’

Notes:

For further comment or information, media should contact Nathan Stilwell at nathan.stilwell@mydeath-mydecision.org.uk or phone 07456200033.

My Death, My Decision is a grassroots non-profit organisation that campaigns for a balanced and compassionate approach to assisted dying in England and Wales. As a growing movement, we are at the forefront of social change: nearly 90% of the public now favours a change in the law to allow adults of sound mind, who are either terminally ill or facing incurable suffering, the option of a peaceful, painless, and dignified death.

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